Regional Children and Youth with Special Health Care Needs (CYSHCN) Centers provide a system of information, referral and follow-up services so all families of children and youth with special health care needs and providers have access to complete, accurate information.
Advocacy and Benefits Counseling for Health is a Wisconsin-based nonprofit public interest law firm dedicated to ensuring health care access for children and families, particularly those with special needs or who are at risk. ABC for Health’s mission is to provide health care consumers with the information, advocacy tools, legal services, and expert support to navigate through America’s complex and confusing health care financing system.
Wisconsin First Step is a statewide Information and Referral (I&R) hotline that serves families with children who have special health care needs and professionals. Wisconsin First Step has two components. It serves as the Central Directory for Wisconsin’s Birth To 3 Program. This statewide program provides supports and services to infants and toddlers with developmental disabilities and their families. Another component to First Step is to serve as the I&R hotline for the CYSHCN Regional Centers. In addition to providing referrals to disability-related resources, Parent Specialists provide direct linkages to the closest CYSHCN Regional Center. A health and human services database of disability-related resources has been developed and is regularly updated.
Parent to Parent of Wisconsin provides the one-to-one connection for parents new to having a child with special needs, experiencing a time of stress or simply seeking support, resources and information with another parent who has been there.
Wisconsin Medical Home Initiative – The purpose of the Wisconsin Medical Home Initiative is to promote the concepts of medical home for primary care providers, families, and service providers throughout Wisconsin. Training, technical assistance and resources will be provided to support Medical Home implementation with a focus in the areas of early identification of developmental concerns in the primary care practice and coordination of care and services including those for youth with special health care needs.
Health Transition Wisconsin – the Health Transition Wisconsin Toolkit and website were developed to assist all youth, families, and medical providers in transition from pediatric to adult health care.